When Rare Families need a little helping hand, you can contact us and we can provide care packs to the parent and child in hospital as well as the family members at home.
All members of our Rare Families are important to us and we want to help strengthen their network by providing opportunities to meet other people traveling a similar journey.
Join Jack's Butterflies as a general member and use your skills to help us reach more Rare Families around Australia. Volunteer at fundraisers, run support groups, family events and more.
We hope to start these classes in 2022 that will be run by volunteers. The aim is to teach new skills or build on existing skills in a social setting and donating the final product to Rare Families
We shine the spotlight on rare diseases and the families journey pre and post diagnosis.
Help us by registering your family and sharing details of your child with a rare disease. Our aim is to capture every person under the age of 18 years who has a rare disease diagnosis or is still undiagnosed.
"Life isn't a matter of milestones,
but of moments"
Rose F Kennedy